Modern approaches to assessing the quality of life in children with arrhythmias
https://doi.org/10.21508/1027-4065-2016-61-5-75-81
Abstract
The paper presents the special questionnaire «Quality of Life in Children with Arrhythmias» that reflects the subjective assessment of quality of life (QOL) in patients with cardiac arrhythmias and a procedure for the comprehensive assessment of QOL in children with arrhythmias on the basis of subjective and objective data. It gives the results of using the above procedures for assessing QOL in 151 children (71 girls and 80 boys) aged 6–18 years with various cardiac arrhythmias. Complaints were absent in 21,9±3,4% of the children with arrhythmia and were nonspecific, being rarely observed, in 29,8±3,7%, suggesting that there was no reduction in QOL according to their subjective assessments. Comprehensive assessment of QOL showed that its indicators were significantly lower (p<0,05) than those obtained by subjective assessments. Thus, cardiac arrhythmias accompanied by a varying decrease in QOL were seen in 84,8±2,9% of the children, as shown by its comprehensive assessment and in 48,3±4,1% of the patients, as evidenced by their subjective assessments. Patients with organic heart disease and/or signs of chronic heart failure exhibited a decrease in QOL significantly more often (p<0,001). The leading causes of worse QOL were health changes in 56,3±4,0% of the patients, psychoemotional disorders in 77,5±3,4%, autonomic dysfunction in 81,5±3,2%, reduced adjustment in 82,8±3,1%, and pathological changes in cardiovascular function in 84,1±3,0%, as indicated by ECG, 24-hour ECG monitoring, and Doppler echocardiography.
References
1. Либис Р.А., Прокофьев А.Б., Коц Я.И. Оценка качества жизни у больных с аритмиями. Кардиология 1998; 3: 49–51. (Libis R.A., Prokof’yev A. B., Kots Ya.I. Quality of life in patients with arrhythmias. Kardiologiya. 1998; 3: 49–51. (in Russ))
2. Мясоедова Н.А., Тхостова Э.Б., Белоусов Ю.Б. Оценка качества жизни при различных сердечно-сосудистых заболеваниях. Качественная клиническая практика 2002; 1: 3–8. (Myasoedova N.A., Tkhostova E.B., Belousov Yu.B. Quality of life in various cardiovascular diseases. Kachestvennaya klinicheskaya praktika 2002; 1: 3–8. (in Russ))
3. Нагорная Н.В., Седнев В.В., Дубовая А.В. Оценка качества жизни пациентов в терапевтической и педиатрической практике врача. Соврем педиатр 2005; 3: 8: 169–173. (Nagornaya N.V., Sednev V.V., Dubovaya A.V. Evaluation of the quality of life for patients in a therapeutic and pediatric doctor’s practice. Sovrem pediatr 2005; 3: 8: 169–173. (in Russ))
4. Дубовая А.В. Качество жизни и пути его улучшения у детей с нарушениями ритма сердца. Автореф. дисс. … к.м.н. Донецк, 2008; 29. (Dubovaya A.V. The children’s with heart arrhythmias quality of life and ways of its improvement. Avtoref. diss. … k.m.n. Donetsk, 2008; 29. (Ukr))
5. Дубовая А.В. Качество жизни детей с врожденными пороками сердца. Мат. II Всероссийской заочной научно-практической конференции с международным участием «Качество жизни и здоровье». С.-Петербург, 2015; 97–106. (Dubovaya A.V. Quality of life in children with congenital heart disease. Materials II of the All-Russian correspondence scientific and practical conference with the international participation «Quality of life and health». Saint-Petersburg, 2015; 97–106. (in Russ))
6. Дубовая А.В., Пшеничная Е.В., Бордюгова Е.В. Качество жизни и пути его улучшения у детей после реконструктивных кардиохирургических операций. Мат. научно-практической конференции педиатров, неонатологов, детских хирургов и анестезиологов-реаниматологов смеждународным участием «Актуальные вопросы современной педиатрической науки и практики». Ставрополь, 2015; 280–284. (Dubovaya A.V., Pshenichnaya E.V., Bordyugova E.V. Quality of life and ways of its improvement in children after reconstructive cardiac surgery. Materials of scientific and practical conference of pediatricians, neonatolog, children’s surgeons and intensivists with the international participation «Topical issues of modern pediatric science and practice». Stavropol’, 2015; 280–284. (in Russ))
7. Сухарева Г.Э. Аритмии у новорожденных (Часть 1). Неонатология, хирургия и перинатальная медицина 2013; 3: 4: 41–45. (Sukhareva G.E. Arrhythmias at newborns (Part 1). Neonatologіya, khіrurgіya ta perinatal’na meditsina 2013; 3: 4: 41–45. (in Russ))
8. World Health Organization. Measurement of level of health: Report of study group. WHO Technical Report Series. 1957; 137.
9. Новик А.А., Ионова Т.И., Кайнд П. Концепция исследования качества жизни в медицине. Санкт-Петербург: ЭЛБИ, 1999; 139–142. (Novik A.A., Ionova T.I., Kaynd P. The concept of quality of life research in medicine. Saint-Petersburg: ELBI, 1999; 139–142. (in Russ))
10. Carr A.J. Measuring quality of life. Is quality of life determined by expectations or experience? Brit Med J 2001; 322: 1240–1243.
11. Новик А.А., Ионова Т.И., Никитина Т.П. Концепция исследования качества жизни в педиатрии. Педиатрия 2002; 6: 83–87. (Novik A.A., Ionova T.I., Nikitina T.P. The concept of quality of life research in pediatrics. Pediatriya 2002; 6: 83–87. (in Russ))
12. Sears S.F., Conti J.B. Quality of life and psychological functioning of ICD patients. Heart 2002; 87: 488–493.
13. Bowling A., Bond M., Jenkinson C., Lamping D.L. Short Form 36 (SF-36) Health Survey questionnaire: which normative data should be used? Comparisons between the norms provided by the Omnibus Survey in Britain, the Health Survey for England and Oxford Healthy Life Survey. J. Public Health Medicine 1999; 21: 255–270.
14. Martin M., Kosinski M., Bjorner J. et al. Item Response Theory Methods can Improve the Measurement of Physical Function by Combining the Modified Health Assessment Questionnaire and the SF-36 Physical Function Scale. Quality Life Res 2007; 16: 467–481.
15. Morales N., Silva C., Frontarolli A. et al. Psychometric properties of the initial Brazilian version of the CHQ-PF50 applied to the caregivers of children and adolescents with cerebral palsy. Quality Life Res 2007; 16: 437–444.
16. Raat H., Mangunkusumo R., Landgraf J. et al. Feasibility, reliability, and validity of adolescent health status measurement by the Child Health Questionnaire Child Form (CHQ-CF): internet administration compared with the standard paper version. Quality Life Res 2007; 16: 675–685.
17. Кушаковский М.С. Аритмии сердца (Расстройства сердечного ритма и нарушения проводимости. Причины, механизмы, электрокардиографическая и электрофизиологическая диагностика, клиника, лечение). Руководство для врачей. СПб: ООО Изд-во «Фолиант». 2004; 672. (Kushakovskiy M.S. Heart arrhythmias (Heart arrhythmias. Causes, mechanisms, electrocardiographic and electrophysiological diagnostics, clinic, treatment). The management for doctors. SPb: OOO Izd-vo «Foliant», 2004; 672. (in Russ))
18. Седнев В.В., Збарский З.Г., Бурцев А.К. Детский опросник неврозов (ДОН). Методические указания. Донецк, 1997; 8. (Sednev V.V., Zbarskiy Z.G., Burtsev A.K. Child questionnaire of neuroses (CQN). Instructional guidelineis. Donetsk, 1997; 8. (Ukr))
19. Gudelines for implantation of cardiac pacemaker and antiarrhythmia devices. A report of the American College of Cardiology. American Heart Association. Task force on Assesement of diagnostic therapeutic cardiovascular procedures (Committee of Pacemaker Implantation). J Am Coll Cardiol 1998; 31: 5: 1175–1209.
20. Школьникова М.А. Диагностика и лечение жизнеугрожающих нарушений сердечного ритма в детском возрасте. М, 2004; 86. (Shkolnikova M.A. Diagnostics and treatment of the life-threatening violations of a cardiac rhythm at children's age. M, 2004; 86. (in Russ))
Review
For citations:
Dubovaya A.V. Modern approaches to assessing the quality of life in children with arrhythmias. Rossiyskiy Vestnik Perinatologii i Pediatrii (Russian Bulletin of Perinatology and Pediatrics). 2016;61(5):75-81. (In Russ.) https://doi.org/10.21508/1027-4065-2016-61-5-75-81